 Lexie's Blog - About Me
 Activities/Hobbies: Softball, running, boogie boarding, playing with her pets, going to the movies and shopping
Favorite Movies: Dumb & Dumber, Remember the Titans, Wedding Crashers
Favorite Music: U2, Hip-Hop, Pop & Country
Favorite Books: Mystery novels
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posted by admin on June 13, 2010 23:33 as Feelings
I hate this disease. It is taking another one of my friends Christian... Please say any extra prayers for him and his family. He was diagnosed 1 month before me in 2008, he is 13yo and loosing his battle. Thirteen is just too young, he is so happy with the snake we gave him.... Lord help my friends find eternal peace in heaven and find one another... We must find a cure.... Yaya
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posted by admin on January 09, 2010 23:59 as Feelings
This is an amazing nightmare ( would love to type F******). My back has finally given out from lifting the heavy wheelchair into the truck.. I have nursed it for the past week and it had enough last night.. I was so bad today, I cried for help.. Thank God Lex was sleeping, because I couldn't get up to give her the crutches.. Nicole came to save me, as I slept, but was here if Lex woke.... Dom came tonight to give me time off, but she will be home tomorrow and three doctor appts on Monday.... This is never ending and ANY PRAYERS ARE THE GREATEST GIFT AT THIS TIME......
Hugs: Horizontal Mom
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posted by admin on December 23, 2009 7:12 as Feelings
The test finally came back from UCSD with the antibiotic that will kill the bacteria, it is Rocephin two times a day through her PICC line. I have just finished giving the morning dose.. Having issues with her PICC line, so we might have to make a trip into Children's today to have another one placed.
But milestones are happening. Lex was able to get up on her crutches and get a shower. Her pain is being controlled which is the greatest gift to me. I hate having her in pain and not being able to give her anymore meds. So this is the best of all three surgeries that she is comfortable.
Lots of angels at work, helping make our holiday brighter..The Dalton's gave us an early X-mas gift, Thank you to the Reilly's, we had a great visit and Vince looks so good. He is having his leg ...
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posted by admin on March 30, 2009 19:07 as Feelings
Finally see improvement everyday and my Lexie is back. The greatest achievement of this month is Lex went to Disneyland with SOMBFAB(some of my best friends are bald) support group. She was in a group with her favorite nurses Michelle & Marisa ! And with her fellow warriors Tate & Briahnna. She enjoyed getting to know Garrett, Stephan , Fedel and having Mckenzie (Tate sister) with them. It was a long adventure but a great way to celebrate her 1 year since diagnosis anniversary. She had to use a wheelchair and those with healthy legs were so helpful to push her. She has also successfully completed drivers training and will soon get her permit.
Vince has started back to chemo today and please say extra prayers for him. Also Osteo has touched another child in San Diego, Matt 14yo, so please add him to any prayer list. Connor is still holding on , so ... >> full...
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posted by on March 03, 2009 21:02 as Feelings
Finally made it home. It has been a rough week trying to control her pain, she just keeps asking when will this end. I wake her every 4hrs to give her pain meds and still in the day she will have times of incredible pain. So please pray for minimal pain that she must endure. Today Vince had his lung surgery & only one nodule was found. So extra prayers for controlled pain for him as well. And for Connor who is fighting his final battle. On a happier note Emily & Briahanna are finishing their final chemo's this week. It has been exhausting, but we just keep the faith & fight..And never forget our hospital family who fights along our side.
Love to all: Yaya's Mom
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posted by on February 01, 2009 19:57 as Feelings
Surgery is set for Feb. 23rd @ 8am. Now we start the final countdown. Dr B, X-rays on the 3rd & multiple scans on the 9th to check for cancer. It is always a stresser to get through all of this. Maris has the flu this weekend, but we have so far knock on wood, kept it from Alexis & Tessa. Our friend & Osteo Warrior Tate is @ the Super Bowl having his Make A Wish & the family will then enjoy Disney World. We pray they have the time of there lifes, they deserve it. They were two months ahead of us in this nightmare, and showed us the way. They came to visit Lex last weekend to help cheer her up. Also Alexis' new friend Abigail (Texas) is having revision surgery of her leg tomorrow, please keep her in your prayers.Caroline has just reached day 200 after bone marrow ... >> full...
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posted by on January 31, 2009 3:56 as Feelings
It was a whirlwind week of emotions. Yesterday Lex got a package, a Vermont Teddy Bear from her Aunt & Cousin's the Carey's in Revere Mass. She held it close & collected her thoughts on what she was going to say @ D'mario's funeral. She was able to crutch up to the alter with Tessa standing by her side and speak about her special friend. I was so proud of her! It was a beautiful service and by the end the tears were replaced with smiles & a calming peace. This week took it toll and she will rest this weekend. She did have a week without any screaming pain moments so that is a blessing. We see the Dr on the 3rd, we pray for some answers. Love to all: Exhausted Mom
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posted by on January 23, 2009 23:58 as Feelings
We give her a IV drug to help her bones, but it makes her feel like shit. It is a side effect, I checked with Vince's parents and they say it should get better tomorrow. All the suffering she goes through to get better. She feels like she has the worst flu ever, the chills are causing the leg to shack which in turn causes more pain. It was a day of balancing pain pills, nausea meds, and keeping her comfortable. She spent the most part of the day sleeping, she has finally closed her eyes now,Thank you Lord! Last night we saw every hour pass, she was that uncomfortable !
Thank you Susie for the beautiful flowers. We got so used to Yaya not being able to have them, but now that she is done with chemo, they really brightened our day!
A true Tessa sign off, ... >> full...
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posted by on January 20, 2009 21:16 as Feelings
Today our friend D'mario became an angel @ 7yo. He passed with the Best Mom in the world by his side Samantha. He fought a long hard battle since 2005, but was at pure peace and ready to be without pain. Please keep my girls in your prayers to get through this week, D'mario was very special to all my girls. We loved watching you race down the hospital corridors on your red bike with IV pole attached, giving the nurses hell. Or racing on the back patio with Nicole, we will forever see that smile. And that night we had Oscars for dinner. Rest in peace our young friend and you will always be in our hearts..... lesSbaDd forever.....
Also my friend from Sharp MRI Debbie lost her son Eric to the battle, he was 21yo. Debbie was with Alexis for her first MRI that awful first night of diagnosis & kept ... >> full...
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posted by on January 18, 2009 1:05 as Feelings
The wait for a solution is the worst part on nights like these. One wrong twist and screaming pain. It has been such a long night, but finally she has closed her eyes. To see Yaya in so much pain again is gut wrenching. And sleep is not what can be found. I know everyday her pain is increasing, but we are a weeks away from the Dr's having a solution. Please keep her in your prayers and for a brilliant Dr. to know the answer. Lord Help Us!!!!! Donna
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