It has been a down pour of rain here in Diego, the worst I have ever seen. And then after a day of doctor appts in the rain lead to a down pour of tears.. It has taken me a few days to collect my thoughts and attempt a post. Great news first: Started laser treatments 3x's a wk with Dr Specht in Encinitas to try and kill the infection that way.
second: X-rays @ Dr Yaszays looked great, no walking for another 5mos and he took his time to explain it all. He is a Ewings sarcoma survivor and helps us all a great deal.. Still looking for a new Ortho Oncologist, but no one wants to let her keep her leg.. So Lex is battling down for an extra inning game and we are supporting her.
Third: off to Dr Pong the infectious disease specialist, PICC line got pulled, done with IV antibiotics for now, but on to a lifetime of 3,000mg of Amoxicillian a day to keep the leg... Lex is going for it and handling is well so far...
Fourth: We are ever thankful for all the prayers, keep her on all the lists, that the antibiotics keep the infection at bay and bone will grow around her new prosthesis...
Thank you for all the calls, texts & email to support us.. Dinners, CostCo or Henry's card are always helpful most right now.. We have Lex home and keep her comfortable in a hospital bed. Up and about on crutches, but going out in the rain is too dangerous.. Wheelchair makes her life easier and she has resumed home tutoring for school... We have so much to be thankful for and as I say" When I wake knowing I still have my daughter, I can handle anything"!!! It has just been 1yr since the passing of Matthew, Eric & D'mario, so extra prayers for strength for their parents... You can contact me @ johnson.5150@hotmail.com
Love & Health: Donna mom to Alexis, Tessa & Maris
 comments (5)
COMMENTS
[ Posted by Mary Jo Thomas, January 27, 2010 20:04 ]
Lexi,
You are in my constant prayers, and I think you are one of the bravest people alive. I love your picture with your mom. Miss seeing you at PHS. God Bless you!
Mary Jo Thomas
[ Posted by bruno d, January 28, 2010 15:21 ]
Donna and family you are in our prayers,so strong all of you,god bless's each of us daily ,i know that i have been blessed to have met your family,from my struggles with this disease in our lives.Take it 1 day at a time and know we are all praying for you and a cure for the infection to be cured and her bone to grow into prothesis.Love you all bruno and family,keep going strong lexi,you will prevail!!
[ Posted by terry norwood, January 28, 2010 19:34 ]
You gals look fabulous! i hope i can come visit with lauren one day. i am so jealous.
it is amazing how much the girls have grown up. much love, terry norwood
[ Posted by Cindy Keiser, February 02, 2010 0:24 ]
Hi family, we're all still in shock. Everyone looks wonderful in the photo and I hope you're able to find smiles off camera.
I'll email to arrange a pick-me-up.
Much love from the Keiser - Avery family!
[ Posted by Alexa K, February 13, 2010 22:25 ]
So glad to hear from you! I am so grateful I have found you on the web Alexis-and thank you Donna for all the posts! Best of luck and Happy Valentines Day!
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Lexie's Blog - About Me
Activities/Hobbies: Softball, running, boogie boarding, playing with her pets, going to the movies and shopping 
